Cancer Support Group

Saturday, Jul 11th

Last update:06:42:40 AM GMT

Psychosocial Aspects and Care for Terminal Illness

Advice for Care Givers
  • Good Life Style
  • Social Support
  • Exercise & Relaxation
  • Getting enough sleep
  • Planning for Respite
  • Sharing the Care
  • Saving Work
  • Involving Friends & Relatives
In Patients with HIV/AIDS the family needs
Practical care
  • Overcome anger
  • Overcome unfairness of the infected person
  • Overcome fear of Infection / Ostracism
  • Help to accept
  • Trained to look after
  • Educate others
  • Observe preventive measures at home
Psychological needs
  • Resentment
  • Fear
  • Anger against patient, hospital, fate
  • Blaming – worse
  • Accepting – things go on
  • Know – death will come
  • Dignity – we can give
The patients family the family as Care Giver
When the husband is ill
  • Wife has to make changes in household duties
  • Involve herself in business matters
  • Feels threatened at loss of security
  • Schedule hospital visits
  • Loneliness
  • Resentment
When the wife is ill
  • Husband’s sense of loss is greater
  • Less flexible not used to looking after children
  • Resentment steps in
  • Should be allowed freedom to follow his hobby at least once a week
  • The reversal of roles is more difficult for a man to accept than a woman
Once a diagnosis of Cancer is made family may react in different ways
  • Secrecy both form patients and outsiders
  • Chronic worrying or chronic happiness
  • Communication with the patient decreases as they do not want to trouble them
  • Opposing this is not to accept the patient’s problems or treat him as normal. Due to this he cannot communicate his fears due to his fear of ridicule.
The Family as Second Order Patients
  1. Denial – they do not believe the diagnosis so they visit various doctors, faith healers, miracle performers etc.
  2. Once the disease is confirmed Anger – at the patient for his life style – at the Doctor for not being able to cure At the Hospital – for not looking after properly
  3. Guilt – not looking after properly. Not taking the patient to the doctor earlier etc.
Home Based Care
Excellent Symptom Care at Home is Possible through
  • Willing Care Givers
  • Competent Home Care Team
Who exactly is qualified to do Hospice Work?
  • Hospice care is a team effort
  • A patient with advanced disease has different needs at different times
  • The team consists of:
    • Doctors
    • Nurses
    • Volunteers
    • Social worker
    • Occupational therapists etc.
  • The work at SAS is done by a group of religious sisters who have commitment to service without looking at Reward or Fame
  • The deep joy and happiness on a patient’s face, his whispered Thank You, more than makes our day
Day Hospice provides
  • Social contact
  • Mental stimulation
  • Relief for caring family members
  • Psychological support
  • Basic nursing care
  • Access to doctor for symptom control
To sum up
  • Hospitality
  • Organized care
  • Symptom control
  • Psychological control
  • Individual care
  • Communication
  • Education
In the words of Dome Cicely Saunders
You matter because you are you
You matter to the last moment of your life
We will do whatever we can
To help you live until you die.
Cancer Patient


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